WHAT IS DRAVET SYNDROME ?

Dravet syndrome is a rare form of epilepsy associated with neurological development disorders. The onset is during the first year of life in a normal developing child.

THE HISTORY OF DRAVET SYNDROME

Dravet Syndrome was first described in 1978 as « Severe Myoclonic Epilepsy in Infancy » (SMEI) by Dr Charlotte DRAVET but has been recognized throughout the world since then.

FAMILY SUPPORT

FAMILY STORIES

Dravet syndrome is a rare and deeply impacting condition for both the child and his family. That is why, throughout the world, families have gathered around association to provide advice and support.

THE FIRST 20 QUESTIONS ON

DRAVET SYNDROME



FAMILY ASSOCIATION