Family support

  • Dravet syndrome is a rare and deeply impacting condition for both the child and his family. That is why, throughout the world, families have gathered around association to provide advice and support.

Family association

Austria

http://dravet-syndrom.at/

Belgium

http://www.ligueepilepsie.be/

Canada

http://dravet.ca/

Croatia

http://www.dravet-sindrom-hrvatska.hr/

Finland

https://www.epilepsia.fi/

France

http://www.alliancesyndromededravet.fr/

Germany

http://www.dravet.de/

Italy

https://www.sindromedidravet.org/

Italy

http://www.dravet-italia.org/

Netherland

http://www.dravetsyndroom.eu//

Norway

http://www.dravet.no/

Poland

http://www.dravet.pl/

Portugal

http://www.dravet.pt/

Romania

http://www.dravet.ro/

Spain

https://www.dravetfoundation.eu/

Sweden

http://www.dravetssweden.se/

Switzerland

http://www.dravet.ch

United Kingdom

https://www.dravet.org.uk/

Family stories

Please find below interviews of families with a Dravet child.

Announcement of the diagnosis

Genetic concerns

Controlling the seizures

The importance of early treatment

Daily Life

Integration at school

Reaction of others

Conclusion family stories

Doctors perspective

Please find below interviews of doctors coping with Dravet children.

Vaccination – Pr Ingrid Scheffer

SUDEP – Dr Peter Camfield

Genetics – Dr Arvid Suls